Getting a lupus diagnosis can be overwhelming, and not just for the worry about your health. There is so much to learn and do, from deciding whether or not to tell your family, friends and employer that you have lupus, to figuring out how to learn to live with the disease. We’re here to help you through this difficult part of your new life with lupus.
One of the difficult parts can be gathering the information at a high level. What kind of doctors treat lupus? What medications will I need to take? What can I expect? What should I watch out for? And where can I find support?
A piece of advice we often hear in our support groups from people who have been living with lupus for a long time: stop and take a deep breath. You are not alone. There are many people here for you. Read up and educate yourself, but take it as it comes.
Here is some more advice and resources from support groups, our health educators and Lupus Foundation employees who are living with lupus themselves.
Find your care team
Doctor’s appointments and finding the best care for you are facts of life with lupus. Seek referrals from your primary care physician or other trusted healthcare professionals. A strong doctor-patient relationship is important and will help you to better manage this disease. It may take some perseverance, but it’s worth the work to make sure you have the care team that’s keeping you and your needs in your battle with lupus as a top priority.
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